Lived Reality of Retinopathy of Prematurity Eye Examinations: A Study Protocol for the Exploratory Qualitative Study With Whānau Māori

Abstract

Retinopathy of prematurity (ROP) is an eye condition that predominately affects preterm infants born less than 30+6 weeks gestational age and/or with a birthweight less than 1250 g. If left untreated ROP can result in permanent blindness, and early detection with regular eye examinations and appropriate treatment can prevent this outcome. The necessary eye tests can be invasive for the infant and leave whānau (extended family) feeling distressed and anxious, which is often why whānau are encouraged to leave the room while the eye examination takes place. This research will explore the lived experiences of whānau Māori during the eye tests in the Neonatal Intensive Care Unit (NICU). Hui (focus groups/interviews) have been chosen in different locations to obtain diverse whānau Māori lived experiences. During the hui, relationships will be established and in-depth discussions will occur. By carrying out this research, a Māori perspective of the ROP eye test and surrounding protocols will be gained as well as insight into how the experience can be optimised for whānau Māori.