Supporting continued work under the UNCRPD – views of employees living with mild cognitive impairment or early onset dementia

Author:

Karjalainen Katja1ORCID,Issakainen Mervi2ORCID,Ylhäinen Marjo1ORCID,Marashi Sheida3,Nedlund Ann-Charlotte4ORCID,Boger Jennifer35ORCID,Astell Arlene678ORCID,Mäki-Petäjä-Leinonen Anna1,Nygård Louise9

Affiliation:

1. Law School, University of Eastern Finland, Joensuu, Finland

2. Department of Social Sciences, University of Eastern Finland, Kuopio, Finland

3. Deparment of System Design Engineering, University of Waterloo, Waterloo, ON, Canada

4. Department of Health, Medicine and Caring Sciences (HMV), Division of Society and Health, Linköping University, Linköping, Sweden

5. Research Institute for Aging, Waterloo, ON, Canada

6. KITE Research Institute, University Health Network, Toronto, ON, Canada

7. Departments of Occupational Science and Occupational Therapy and Psychiatry, University of Toronto, Toronto, ON, Canada

8. School of Psychology and Clinical Language Sciences, University of Reading, Reading, UK

9. Department of Neurobiology, Care Sciences and Society (NVS), Division of Occupational Therapy, Karolinska Institute, Stockholm, Sweden

Abstract

This article reports the results of a socio-legal investigation into how continued work among people living with progressive cognitive impairments such as mild cognitive impairment (MCI) or early onset dementia (EOD) can be supported. This study that makes use of empirical data collected in Finland, Sweden and Canada seeks to give voice to people living with MCI or EOD and set their experiential knowledge in dialogue with equality rights related tools provided by the UN Convention on the Rights of the Persons with Disabilities (UNCRPD). The results illustrate that there are effective tools available that remove barriers to participation and support continued work of employees living with cognitive impairments at least for some time while impairments are mild. Ideally, flexibility and solidarity in the workplace automatically eliminates the effects of individual impairment. However, cognitive impairments are often such that along with general accessibility measures individual accommodations are needed. Supporting continued work expands the freedom to continue meaningful work in the preferred manner and offers people the means to gain a livelihood and participate in society as a member of the work community on equal basis with others.

Funder

Forskningsrådet om Hälsa, Arbetsliv och Välfärd

Academy of Finland

Canadian HIV Trials Network, Canadian Institutes of Health Research

Ontario shores research chair in Dementia Well-being

Publisher

SAGE Publications

Subject

Law,Sociology and Political Science

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