Making virtual health care accessible to the deaf community: Findings from the telehealth survey

Author:

Mussallem Ashley1,Panko Tiffany L1ORCID,Contreras Jessica M1,Plegue Melissa A2,Dannels Wendy A1ORCID,Roman Gretchen3,Hauser Peter C1,McKee Michael M2

Affiliation:

1. NTID Research Center on Culture and Language, Rochester Institute of Technology, Rochester, NY, USA

2. Department of Family Medicine, University of Michigan Medical School, Ann Arbor, MI, USA

3. Clinical and Translational Science Institute, University of Rochester, Rochester, NY, USA

Abstract

Introduction To reduce COVID-19 exposure risk, virtual visits became widely adopted as a common form of healthcare delivery for the general population. It is unknown how this affected the deaf population, a sociolinguistic minority group that continues to face communication and healthcare barriers. The survey's objective was to describe the deaf participants’ experiences with telehealth visits. Methods A 28-item online survey, available in American Sign Language and English, was developed and disseminated between November 2020 and January 2021. Ninety-nine deaf participants responded. Descriptive statistics were performed to assess the participant's virtual health care use, experiences, and communication approaches. Results Seventy-five percent of respondents used telehealth at least once in the past 12 months (n = 74; age = 37.6 ± 14.5 years). Of those who used telehealth, nearly two-thirds experienced communication challenges (65.3%; n = 49). Half of the participants reported having to connect via a video relay service that employs interpreters who maintain general certification instead of a remote interpreter with specialized health care interpreting certifications for video visits with their health care providers (n = 37) and a third of participants reported needing to use their residual hearing to communicate with their providers (n = 25). Conclusion Standard protocols for health care systems and providers are needed to minimize the burden of access on deaf patients and ensure virtual visits are equitable. It is recommended these visits be offered on Health Insurance Portability and Accountability Act-compliant platforms and include multi-way video to allow for the inclusion of remote medical interpreters and/or real-time captionists to ensure effective communication between the provider and the deaf patient occurs.

Funder

National Institute on Deafness and Other Communication Disorders

Publisher

SAGE Publications

Subject

Health Informatics

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