Perceived Effects of Neuropsychiatric Symptoms on Functional Status in Early-stage Huntington Disease-Reference-Cited by-同舟云学术

Perceived Effects of Neuropsychiatric Symptoms on Functional Status in Early-stage Huntington Disease

Published:2021-02-05 Issue:2 Volume:44 Page:141-150
ISSN:0193-9459
Container-title:Western Journal of Nursing Research
language:en
Short-container-title:West J Nurs Res

Author:

Gibson Jessie S.¹^ORCID,Rhoten Bethany A.²,Ridner Sheila H.²,Claassen Daniel O.³

Affiliation:

1. University of Virginia School of Nursing, Charlottesville, VA, USA

2. Vanderbilt University School of Nursing, Nashville, TN, USA

3. Department of Neurology, Division of Behavioral and Cognitive Neurology, Vanderbilt University Medical Center, Nashville, TN, USA

Abstract

Neuropsychiatric symptoms in Huntington disease (HD) are commonly encountered, but their effects on functional status are poorly understood. In this qualitative study guided by the Theory of Unpleasant Symptoms, 15 HD patients and caregivers completed semi-structured interviews regarding perceived effects of neuropsychiatric symptoms on functional status. Physical, cognitive, and social functional effects were reported, with negative effects on daily activities and social withdrawal being reported by the greatest number of subjects. Participants also reported improved function with intervention for neuropsychiatric symptoms. This study provides a novel description of the lived experiences of HD patients with neuropsychiatric symptoms.

Funder

Vanderbilt Institute for Clinical and Translational Research

Publisher

SAGE Publications

Subject

General Nursing

Link

http://journals.sagepub.com/doi/pdf/10.1177/0193945921992545

Reference33 articles.

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