The burden of caregivers of schizophrenia outpatients during the COVID-19 pandemic: A same-sample comparison with the pre-pandemic burden

Abstract

Background: The coronavirus disease 2019 (COVID-19) has affected the vulnerable Brazilian population. In this study, we investigated the burden of COVID-19 on caregivers for patients with schizophrenia. Objective: This study assessed objective and subjective burden of caregivers for patients with schizophrenia during the COVID-19 pandemic and compared the measurements obtained in the study to that before the pandemic. Methods: The study included 50 caregivers who were assessed using the Sociodemographic Questionnaire, and the Family Burden Interview Schedule, Brazilian version (FBIS-BR). An adaptation of the Clinical Global Impression-Improvement (CGI-I) was made, in which caregivers evaluated their ‘clinical’ impression about the patient during the COVID-19 pandemic in comparison to pre-pandemic mental status. Results: Most caregivers were female, aged between 24 and 80 years, who were in contact with the patient for about 88.56 hours/week. In relation to caregiver burden, there was a significant increase in the total subjective burden ( p < .001), but not in the total objective burden. The following subjective domains of the burden showed a significant increase: assistance in daily life ( p < .001) and worries about patients’ present and future life ( p = .033). There was a decrease in the objective burden related to supervision of patients’ problematic behaviors ( p = .031). Although the caregiver’s income did not change significantly during the COVID-19 pandemic, there was an increase in the percentage of caregivers who perceived the frequency of financial burden imposed by the patient as ‘very frequent’ and ‘always or almost always’; conversely there was a significant decrease in the subjective perception of the caregiver that the patient imposed financially ‘no burden’ or a ‘seldom burden’ (from 34% to 4%). Conclusion: Although the objective burden of the caregivers, during the pandemic, was similar the pre-pandemic levels, caregivers’ subjective burden increased reinforcing the need for special attention to the caregiver in this global emergency.