The migraine landscape on YouTube: A review of YouTube as a source of information on migraine

Author:

Saffi Hillah1ORCID,Do Thien Phu1,Hansen Jakob Møller2,Dodick David W3,Ashina Messoud1

Affiliation:

1. Danish Headache Center, Department of Neurology, Rigshospitalet Glostrup, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark

2. Danish Headache Knowledge Center, Rigshospitalet Glostrup, Glostrup, Denmark

3. Mayo Clinic, Scottsdale, AZ, USA

Abstract

Introduction YouTube is the most widely used video hosting website in the world; however, the quality and reliability of information is unknown. The aim of this study is to evaluate the content and distribution of the most popular videos on YouTube about migraine. Methods We searched for migraine-related videos on the online video hosting resource YouTube ( http://youtube.com/ ). Two authors screened the titles and video descriptions independently for all videos with a view count of ≥ 10,000 views. For each video we recorded descriptive data, the source/author and the primary purpose/content. Results We identified 351 eligible videos. In total, there was more than 3 days of content viewed more than 163 million times. Only 9% of these videos were authored by healthcare professionals. The majority (44%) of videos focused on complementary and alternative medicine. Discussion YouTube provides a wide array of easily accessible information on migraine, ranging from authoritative sources to potentially questionable content. If used uncritically, this may result in inadequate clinical management. Peer-reviewed information on migraine mechanisms and treatment is needed to provide the best available evidence for the public and patients. Ideally, a professional society or foundation such as the International Headache Society would develop, curate, and distribute content.

Funder

Lundbeckfonden

Publisher

SAGE Publications

Subject

Neurology (clinical),General Medicine

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