Community-Based Participatory Research for Epidemiology, Health Equity, and Community Goals: Insights From Brazil, France, and USA

Author:

Cohen Alison K.1ORCID,Snyder Robert E.2

Affiliation:

1. Department of Epidemiology & Biostatistics, University of California San Francisco, San Francisco, CA, USA

2. School of Public Health, Division of Epidemiology, University of California Berkeley, Berkeley, CA, USA

Abstract

Background Community-based participatory research coproduces knowledge by emphasizing bidirectional exchanges between participants, communities, and researchers. Purpose, Research Design, and Study Sample We highlight three studies in historically marginalized communities on separate continents (Richmond, CA, USA; Rio de Janeiro, Brazil; Marseille industrial zone, France) to exemplify how community-based participatory research improves research, offers tangible community benefits, and values residents more than traditional research methods. Data Analysis We provide insights into the process of conducting meaningful community-based participatory epidemiologic research. Results In each of these communities, community-based participatory research led to high-quality research that helped inform context-appropriate policies and programs to improve health and advance health equity in these communities. Conclusions We recommend that researchers consistently engage with community members during all phases of research so that they can engage more participants, more deeply in the research process, build local capacity, improve data collection and data quality, as well as increase our understanding of research findings to inform future applied research and practice.

Funder

UC Berkeley Center for Emerging and Neglected Diseases

US Fulbright Student program

Fogarty International Center

Fundacao de Amparo à Pesquisa do Estado do Rio de Janeiro

Agence Nationale de Securite Sanitaire de l'Alimentation, de l'Environnement et du Travail

Publisher

SAGE Publications

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