A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers-Reference-Cited by-同舟云学术

A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers

Published:2021-04-01 Issue:12 Volume:40 Page:1715-1721
ISSN:0733-4648
Container-title:Journal of Applied Gerontology
language:en
Short-container-title:J Appl Gerontol

Author:

Leff Bruce¹²^ORCID,Sheehan Orla C.¹,Harrison Krista L.³,Eaton England Ashley⁴^ORCID,Mickler Alex⁵^ORCID,Basyal Pragyashree Sharma¹,Garrigues Sarah K.³,Schuchman Mattan¹,Perissinotto Carla³,Garrett Sarah B.³,Ritchie Christine S.⁶

Affiliation:

1. Johns Hopkins University School of Medicine, Baltimore, MD, USA

2. Johns Hopkins Bayview Medical Center, Baltimore, MD, USA

3. University of California, San Francisco, USA

4. Central Michigan University, Mount Pleasant, USA

5. Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA

6. Harvard Medical School, Boston, MA, USA

Abstract

Homebound older adults have not had a voice in establishing a research agenda relevant to their needs and perspectives. We engaged homebound older adults receiving home-based primary care and caregivers to serve as stakeholder advisors to develop a patient- and caregiver-centered research agenda for home-based care. Over 9 months, we facilitated eight tablet-enabled videoconference meetings. We oriented advisors to patient-centered outcome research and research question development. Advisors developed and prioritized a list of 14 research domains and 127 associated research questions. The top three prioritized research domains in descending rank order (number of associated research questions) were out-of-pocket costs of caregiving (10), access to home-based care and related policy issues (19), and relationship with doctors (15). This research agenda can guide researchers’ efforts to focus on areas of importance to the ultimate end users of their research.

Funder

Patient-Centered Outcomes Research Institute

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology,Gerontology

Link

http://journals.sagepub.com/doi/pdf/10.1177/07334648211004731

Reference3 articles.

1. Homebound Patient and Caregiver Perceptions of Quality of Care in Home-Based Primary Care: A Qualitative Study

Cited by 2 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Patient-centered outcomes and outcome measurements for people aged 65 years and older—a scoping review;BMC Geriatrics;2024-06-18

2. A Qualitative Study of the Social and Lived Experiences of Homebound Older Adults;Journal of Applied Gerontology;2021-08-29