Evidence Map of Non-Pharmacological Dementia Care Partner Interventions Implemented in the US: Gaps and Impact Opportunities

Author:

Baker Zachary G.1ORCID,Dellapina Maria2,Gustavson Allison M.3,Sefcik Justine S.4ORCID,Koeuth Sokha4,Gaugler Joseph E.5,Van Haitsma Kimberly6,Gitlin Laura N.4

Affiliation:

1. Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, AZ, USA

2. Prism Bio, Cambridge, United States

3. Veterans Affairs Health Services Research and Development Center for Care Delivery and Outcomes Research, Minneapolis Veterans Affairs Health Care System, Minneapolis, MN, USA

4. College of Nursing and Health Professions, Drexel University, Philadelphia, PA, USA

5. School of Public Health, University of Minnesota, Minneapolis, MN, USA

6. College of Nursing, The Pennsylvania State University, University Park, PA, USA

Abstract

There are 200+ tested interventions for care partners (family, friends, and fictive kin) of people living with dementia (PLWD). But these interventions do not systematically cover relevant settings. Nor do these interventions affect all relevant outcomes that matter to people and healthcare systems. We present an evidence map of settings and outcomes from translated interventions to identify gaps. Of 190 studies identified, 31 unique interventions were retained in the evidence map. Identified setting gaps included studies set solely in hospitals/medical centers or set in multiple settings. Identified outcome gaps included interventions that improved care partner beliefs about providing care, care partner negative coping strategies, PLWD resources (e.g., social support), and PLWD coping strategies. Armed with an understanding of present gaps, we call on researchers to fill the identified gaps to ensure systematic coverage of settings and evaluation of outcomes that matter to people and healthcare systems.

Funder

National Institute on Aging

National Institute of Nursing Research

Veterans Health Administration Office of Academic Affiliations Advanced Fellowship in Clinical and Health Services Research

Agency for Healthcare Research and Quality (AHRQ) and Patient-Centered Outcomes Research Institute

National Center for Advancing Translational Sciences

Minneapolis Center of Innovation, Center for Care Delivery and Outcomes Research

Publisher

SAGE Publications

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