Rural Caregivers for a Family Member With Dementia

Author:

Stewart Norma J.1,Morgan Debra G.1,Karunanayake Chandima P.1,Wickenhauser Joseph P.1,Cammer Allison1,Minish Duane1,O’Connell Megan E.1,Hayduk Leslie A.2

Affiliation:

1. University of Saskatchewan, Saskatoon, Canada

2. University of Alberta, Edmonton, Canada

Abstract

Forecasts of increasing prevalence of dementia in rural settings, coupled with reliance on family caregiver support, indicate that a greater understanding of caregiver distress in these contexts is necessary. The purpose of this study was to examine family caregiver burden and severity of distress on the day that a family member was diagnosed with dementia at a memory clinic that serves a rural population. Participants in this retrospective study were 231 primary family caregivers of a rural community-dwelling person with dementia. On the diagnostic day, women reported more burden and severity of distress than men and spouses reported more severity of distress than adult children. A structural equation model was not supported for the entire sample, but was supported for women caregivers only ( n = 161). Caregiver distress related to dementia-specific behaviors explained both global distress and burden. Patients’ functional decline was related to caregiver burden.

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology,Gerontology

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