Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program

Author:

Bruening Rebecca1,Sperber Nina12,Miller Katherine1,Andrews Sara3,Steinhauser Karen12,Wieland G. Darryl14,Lindquist Jennifer1,Shepherd-Banigan Megan12,Ramos Katherine14,Henius Jennifer5,Kabat Margaret5,Van Houtven Courtney12

Affiliation:

1. Durham VA Medical Center, NC, USA

2. Duke University School of Medicine, Durham, NC, USA

3. RTI International, Research Triangle Park, NC, USA

4. Duke University, Durham, NC, USA

5. United States Department of Veterans Affairs Caregiver Support Program Office, Washington, DC, USA

Abstract

Development and evaluation of supportive caregiver interventions has become a national priority. This study’s aim was to evaluate how caregivers participating in the Department of Veterans Affairs (VA) Caregiver Support Program (CSP) use and value supportive services. Qualitative semi-structured interviews ( N = 50 caregivers) were the core of a mixed-methods design, and surveys ( N = 160) were supplemental. Caregivers who had used CSP services valued emotional, functional, and health care navigational support, calling support groups and the program coordinator their “lifeline.” However, many described a lack of connection with the program—not knowing about or successfully engaging in program services—and needed more information about available resources. Caregivers in rural areas or caring for individuals with specific diseases reported needing tailored services to meet their unique needs. Policy makers and practitioners should proactively promote supportive services for caregivers. Future research should explore strategies for reducing barriers to accessing tailored support to meet the needs of a diverse caregiver population.

Funder

Center of Innovation for Health Services Research in Primary Care

Durham VA Center for Health Services Research in Primary Care

VA Office of Academic Affairs, Health Services Research & Development PhD Fellowship to MSB

U.S. Department of Veterans Affairs, Caregiver Support Program, and Quality Enhancement Research Initiative

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology,Gerontology

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