Older Parents to an Adult Child With Intellectual Disability: Balancing Dependence With Separation

Abstract

This study focuses on the experiences of older parents who have an adult child with intellectual disabilities (ID), specifically exploring their overall experiences and relationships with their offspring. A qualitative methodology incorporating semi-structured interviews was employed. Participants comprised sixteen older parents to an adult child with mild to moderate ID living in a residential village. Participants described various challenges, including physical and health-related difficulties and loneliness. Interviewees also expressed positive life experiences, such as engaging in new activities and pursuits. Parents noted a newfound balance in their parent–child relationships, affording them more time for personal interests in older adulthood, which they found to be unique opportunities distinct from their earlier years. It is recommended that interactions between older and younger parents of children with ID be fostered, facilitating opportunities for the younger generation to benefit from the experiences of their more seasoned counterparts.