Advance Care Planning: A Story of Trust Within the Family

Author:

Iunius Lory A.1ORCID,Vilpert Sarah12,Meier Clément12,Jox Ralf J.34,Borasio Gian Domenico3,Maurer Jürgen1

Affiliation:

1. Faculty of Business and Economics (HEC), University of Lausanne, Switzerland

2. Swiss Centre of Expertise in the Social Sciences (FORS), Lausanne, Switzerland

3. Palliative and Supportive Care Service, Lausanne University Hospital and University of Lausanne, Switzerland

4. Institute of Humanities in Medicine, Lausanne University Hospital and University of Lausanne, Switzerland

Abstract

As the family usually plays a central role at the end of life, the quality of family relationships may influence how individuals approach advance care planning (ACP). Our study investigates the associations of trust in relatives with regard to end-of-life (EOL) issues—used as a proxy measure of family relationship quality—with individuals’ engagement in EOL discussions, advance directive (AD) awareness, approval and completion, and designation of a healthcare proxy. Using nationally representative data of adults aged 55 years and over from wave 6 (2015) of the Survey of Health, Ageing, and Retirement in Europe (SHARE) in Switzerland ( n = 1911), we show that complete trust in relatives is related to higher engagement in ACP. Subject to patient consent, the family should, therefore, be included in the ACP process, as such practice could enhance patient-centered EOL care and quality of life at the end of life.

Funder

Swiss National Science Foundation

European Commission

Employment, Social Affairs and Inclusion

German Ministry of Education and Research

Max Planck Society for the Advancement of Science

U.S. National Institute on Aging

Publisher

SAGE Publications

Subject

Geriatrics and Gerontology,Gerontology

Cited by 3 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3