Caring for a Parent With a Blood Cancer: Sibling Communication Challenges and Psychosocial Outcomes

Author:

Wright Kevin B.1,Bylund Carma L.2,Bagautdinova Diliara3,Hampton Chelsea N.4,Campbell-Salome Gemme5,Weiss Elisa S.6,Sae-Hau Maria7,Fisher Carla L.2ORCID

Affiliation:

1. PhD, professor, George Mason University, Fairfax, VA, USA

2. PhD, professor, University of Florida, Gainesville, USA

3. PhD, postdoctoral fellow, Wayne State University/Karmanos Cancer Institute, Detroit, MI, USA

4. MA, MSW, University of Florida, Gainesville, USA

5. PhD, assistant professor, Geisinger Medical Center, Danville, PA, USA

6. PhD, senior vice president, The Leukemia & Lymphoma Society, Rye Brook, NY, USA

7. PhD, senior director, The Leukemia & Lymphoma Society, Rye Brook, NY, USA

Abstract

This exploratory survey study used quantitative and qualitative analyses to (a) identify challenges communicating with siblings that adult child caregivers of a parent with a blood cancer encounter and (b) examine how these challenges are related to caregivers’ burden, social support, family openness, and clinical communication quality. A total of 95 caregivers with siblings participated in an online survey. We conducted a qualitative content analysis on an open-ended response to understand their challenges and statistical analyses on responses to validated scales to examine associations between the challenges and psychosocial/communication outcomes. Caregivers encountered nine challenges communicating with siblings (lack of agreement and competing obligations). Caregivers’ family openness, social support, and caregiver burden differed based on several challenges. The number of siblings was linked to poorer outcomes (burden). Adult child caregivers face sibling-related challenges, which may inhibit their communication and well-being.

Funder

The Leukemia & Lymphoma Society

The Carolan Research Institute

Publisher

SAGE Publications

Reference51 articles.

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