Patients’ perception towards chronic disease self-management and its program: A cross-sectional survey

Author:

Halim Nur Atiyah Abdul1,Sopri Nur Hikmah Ahmad1,Wong Yuet Yen12,Mustafa Qarem Mohamed3,Lean Qi Ying14ORCID

Affiliation:

1. Faculty of Pharmacy, Universiti Teknologi MARA, Cawangan Pulau Pinang, Kampus Bertam, Kepala Batas, Pulau Pinang, Malaysia

2. Collaborative Drug Discovery Research (CDDR) Group, Faculty of Pharmacy, University Teknologi MARA (UiTM) Cawangan Selangor, Kampus Puncak Alam, Selangor, Malaysia

3. Faculty of Health Sciences, Universiti Teknologi MARA, Cawangan Pulau Pinang, Kampus Bertam, Kepala Batas, Pulau Pinang, Malaysia

4. Vector-Borne Diseases Research Group (VERDI), Pharmaceutical and Life Sciences CoRe, Universiti Teknologi MARA, Shah Alam, Selangor, Malaysia

Abstract

Objective This study aimed to assess the perceptions towards chronic disease self-management and its program among patients with chronic diseases. Methods A cross-sectional study using pre-validated questionnaire was conducted among patients with chronic diseases at outpatient pharmacy in a hospital in Penang, Malaysia from April to June 2021. Results Of 270 patients participated in this study, 87.8% were interested in chronic disease self-management. Nonetheless, they faced common barriers including time constraint (71.1%), no health monitoring devices (44.1%) and poor health knowledge (43.0%). More than half of the patients expressed that having a better knowledge of the disease and its treatment (64.1%), getting supportive guidance from healthcare providers (59.6%) and having monitoring devices (58.1%) were the top three facilitators to self-management. The patients preferred chronic disease self-management programs that (a) discuss the topic of motivation (b) are available both as mobile applications and hands-on training, (c) individual session, (d) range between 1 and 5 sessions with a duration of 1 to 2 h/session, (e) occurring on monthly basis, (f) conducted by doctor or healthcare professionals and (g) fully sponsored by government or at affordable fee. Conclusion The findings serve as pre-requisite step in future design and development of chronic disease self-management program, targeting the patients’ needs and preferences.

Funder

Universiti Teknologi MARA, Cawangan Pulau Pinang internal research grant

Publisher

SAGE Publications

Subject

Health Policy,General Medicine

Reference44 articles.

1. Department of Health. Report: long term conditions compendium of information (3rd ed). 2012.

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