Multimorbidity and the process of living with ongoing illness

Abstract

Objectives Living with two or more health conditions, or multimorbidity, is associated with higher rates of disability and lower quality of life. To overcome the challenges associated with multimorbidity, person-centred health care is essential. However, to provide person-centred health care, health professionals first need to understand how people with multiple health conditions experience their illness. Methods Sixteen adult participants, with one or more health conditions, were recruited from hospital outpatient and community health services and interviewed twice. Qualitative data from interview transcripts and field notes were inductively analysed using constructivist grounded theory and life chart methods. Findings ‘Living with ongoing illness’ describes a process involving four interrelated experiences. Participants described, ‘recognising something is not right,’ ‘working out what is wrong,’ ‘getting things under control’ and ‘getting on with life.’ A case example is used to illustrate and compare the process across a participant’s first and subsequent health conditions. Discussion Participants with different health conditions shared similar illness experiences. Yet, the process of living with ongoing illness was unique and differed according to participants’ health conditions and life context. By understanding the experiences, needs, and priorities of people with multimorbidity, health professionals can provide timely and relevant health care.