A qualitative study with Italian patients exploring the spiritual dimension during a chronic disease

Abstract

Background Spirituality is a vast dimension influenced by cultural and personal differences. Little is known about the spirituality of patients suffering from a chronic disease in Italy from palliative care hospital settings. Aim To investigate patients’ perspectives about their spirituality during their illness. Method The research question was: ‘How does living with chronic disease inform/shape the spiritual dimension of patients?’. To address it, we conducted a qualitative interview study with thematic analysis. Results We enrolled 21 participants among patients suffering from rheumatic, haematologic, neurodegenerative and respiratory chronic diseases. Participants generally had great difficulty answering the questions researchers posed and often could not define ‘spirituality’. We found different topics grouped under four main themes: definition of spirituality, internal dialogue, expression of spirituality in everyday life and take stock. Religion is not reported as an answer to spiritual suffering, even in a country that is felt religious-driven like Italy. Discussion Patients are generally not cognizant of this dimension even living with a chronic disease; consequently, they cannot express spiritual needs because they can’t recognise them. Health professionals should identify this dimension and its characteristics to recognise potential spiritual suffering.