The roles, responsibilities and practices of healthcare assistants in out-of-hours community palliative care: A systematic scoping review

Author:

Fee Anne1,Muldrew Deborah1,Slater Paul1,Payne Sheila2ORCID,McIlfatrick Sonja13ORCID,McConnell Tracey34,Finlay Dori-Anne1,Hasson Felicity1ORCID

Affiliation:

1. Institute of Nursing and Health Research, Ulster University, Newtownabbey, UK

2. International Observatory on End of Life Care, Lancaster University, Lancaster, UK

3. Marie Curie Hospice, Belfast, Belfast, UK

4. School of Nursing and Midwifery, Queen’s University Belfast, Belfast, UK

Abstract

Background: Access to community palliative care ‘out-of-hours’ – defined as care provided after the normal hours of work – is advocated globally. Healthcare assistants, who provide care under the direction of a qualified professional, are increasingly employed to help deliver such care, yet there is a little understanding regarding their role, responsibilities or contribution. Aim: The aim of this study was to identify the roles, responsibilities and contributions of healthcare assistants in out-of-hours community palliative care. Design: Scoping review Data sources: Five bibliographic databases (CINAHL, MEDLINE, EMBASE, PsycINFO and Scopus) and grey literature were searched using a predefined search strategy. The review was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews statement. Results: The search yielded six papers using quantitative, qualitative and mixed methods. Results highlighted a lack of recognition of the role and contribution of healthcare assistants. A concurrent theme was that healthcare assistants continually monitored and responded to patient’s and family’s physical and emotional needs; there was also self-reported evidence indicating patient and family benefit, such as maintaining a sense of normality and support to remain at home. Discussion: This review highlighted a dearth of evidence relating to the healthcare assistant role in out-of-hours palliative care. Limited evidence suggests they play a role, but that it is hidden and undervalued. Such invisibility will have a significant impact on the planning and delivery of out-of-hours palliative care. Future research is needed on role development for the benefit of patients and caregivers.

Funder

Marie Curie UK

Publisher

SAGE Publications

Subject

Anesthesiology and Pain Medicine,General Medicine

Reference62 articles.

1. World Health Organization. Palliative care (Fact sheets), https://www.who.int/news-room/fact-sheets/detail/palliative-care (2018, accessed 1 September 2019).

2. NHS Scotland. Percentage of end of life spent at home or in a community setting: financial years ending 31st March 2011-2017, http://www.isdscotland.org/Health-Topics/Health-and-Social-Community-Care/Publications/2017-05-30/2017-05-30-End-of-Life-Report.pdf (2017, accessed 27 September 2018).

3. Supporting older people with cancer and life‐limiting conditions dying at home: a qualitative study of patient and family caregiver experiences of Hospice at Home care

4. Wilson DM, Cohen J, Deliens L, et al. The preferred place of last days: results of a representative population-based public survey. J Palliat Med 2013; 16(5): 502–508, http://www.ncbi.nlm.nih.gov/pubmed/23421538 (accessed 27 September 2018).

5. National Institute for Health and Care Excellence (NICE). End of life care for adults: service delivery. (NICE guideline [NG142]), NICE, 2019, https://www.nice.org.uk/guidance/ng142/chapter/Recommendations#providing-out-of-hours-care

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