Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review

Author:

Ament Stephanie MC1ORCID,Couwenberg Inge ME2,Boyne Josiane JJ3,Kleijnen Jos45,Stoffers Henri EJH4,van den Beuken Marieke HJ6ORCID,Engels Yvonne7ORCID,Bellersen Louise8,Janssen Daisy JA19ORCID

Affiliation:

1. Department of Health Services Research, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands

2. Department of Cardiology, Catharina Hospital, Eindhoven, North Brabant, The Netherlands

3. Department of Patient and Care, Maastricht University Medical Centre, Maastricht, Limburg, The Netherlands

4. Department of Family Medicine, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands

5. Kleijnen Systematic Reviews Ltd, York, UK

6. Centre of Expertise for Palliative Care, Maastricht University Medical Centre, Maastricht, The Netherlands

7. Department of Anesthesiology, Pain and Palliative Medicine Radboud University Medical Centre, Nijmegen, The Netherlands

8. Department of Cardiology, Radboud University Medical Centre, Nijmegen, The Netherlands

9. Department of Research and Education, Ciro, Horn, The Netherlands

Abstract

Background: The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure. Aim: To identify tools to help healthcare professionals recognize palliative care needs in patients with advanced chronic heart failure. Design: This systematic review was registered in the PROSPERO database (CRD42019131896). Evidence of tools’ development, evaluation, feasibility, and implementation was sought and described. Data sources: Electronic searches to identify references of tools published until June 2019 were conducted in MEDLINE, CINAHL, and EMBASE. Hand-searching of references and citations was undertaken. Based on the identified tools, a second electronic search until September 2019 was performed to check whether all evidence about these tools in the context of chronic heart failure was included. Results: Nineteen studies described a total of seven tools. The tools varied in purpose, intended user and properties. The tools have been validated to a limited extent in the context of chronic heart failure and palliative care. Different health care professionals applied the tools in various settings at different moments of the care process. Guidance and instruction about how to apply the tool revealed to be relevant but may be not enough for uptake. Spiritual care needs were perceived as difficult to assess. Conclusion: Seven tools were identified which showed different and limited levels of validity in the context of palliative care and chronic heart failure.

Funder

ZonMw

Publisher

SAGE Publications

Subject

Anesthesiology and Pain Medicine,General Medicine

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