Quality indicators for Palliative Day Services: A modified Delphi study

Author:

McCorry Noleen K1ORCID,O’Connor Sean2,Leemans Kathleen34,Coast Joanna5,Donnelly Michael1,Finucane Anne67,Jones Louise8,Kernohan W. George2,Perkins Paul910,Dempster Martin11

Affiliation:

1. Centre of Excellence for Public Health, Centre for Public Health, Queen’s University Belfast, Belfast, UK

2. School of Nursing, Ulster University, Newtownabbey, UK

3. End-of-Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium

4. Department of Radiotherapy and Supportive Care, Universitair Ziekenhuis Brussel, Vrije Universiteit Brussel, Brussels, Belgium

5. Health Economics at Bristol, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK

6. Marie Curie Hospice, Edinburgh, UK

7. Usher Institute of Population Health Sciences and Informatics, University of Edinburgh

8. University College London, London, UK

9. Sue Ryder Leckhampton Court Hospice, Cheltenham, UK

10. Gloucestershire Hospitals NHS Foundation Trust, Cheltenham, UK

11. School of Psychology, Queen’s University Belfast, Belfast, UK

Abstract

Background: The goal of Palliative Day Services is to provide holistic care that contributes to the quality of life of people with life-threatening illness and their families. Quality indicators provide a means by which to describe, monitor and evaluate the quality of Palliative Day Services provision and act as a starting point for quality improvement. However, currently, there are no published quality indicators for Palliative Day Services. Aim: To develop and provide the first set of quality indicators that describe and evaluate the quality of Palliative Day Services. Design and setting: A modified Delphi technique was used to combine best available research evidence derived from a systematic scoping review with multidisciplinary expert appraisal of the appropriateness and feasibility of candidate indicators. The resulting indicators were compiled into ‘toolkit’ and tested in five UK Palliative Day Service settings. Results: A panel of experts independently reviewed evidence summaries for 182 candidate indicators and provided ratings on appropriateness, followed by a panel discussion and further independent ratings of appropriateness, feasibility and necessity. This exercise resulted in the identification of 30 indicators which were used in practice testing. The final indicator set comprised 7 structural indicators, 21 process indicators and 2 outcome indicators. Conclusion: The indicators fulfil a previously unmet need among Palliative Day Service providers by delivering an appropriate and feasible means to assess, review, and communicate the quality of care, and to identify areas for quality improvement.

Funder

Marie Curie

Publisher

SAGE Publications

Subject

Anesthesiology and Pain Medicine,General Medicine

Reference48 articles.

1. Farquhar M., Chapter 45: AHRQ quality indicators. In:Hughes RG (ed.) Patient safety and quality: an evidence-based handbook for nurses. Rockville, MD: Agency for Healthcare Research and Quality, 2008, pp. 41–67.

2. The Quality of Care

3. Association of Palliative Day Services, https://apds.org.uk/what-are-palliative-day-services (accessed January 2018).

4. National Institute for Clinical Excellence. Improving supportive and palliative care for adults with cancer, 2004, https://www.nice.org.uk/guidance/csg4/resources/improving-supportive-and-palliative-care-for-adults-with-cancer-pdf-773375005 (accessed January 2018).

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