Psychometric properties of carer-reported outcome measures in palliative care: A systematic review

Author:

Michels Charlotte TJ12,Boulton Mary3,Adams Astrid4,Wee Bee345,Peters Michele1

Affiliation:

1. Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK

2. Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands

3. Faculty of Health and Life Sciences, Oxford Brookes University, Oxford, UK

4. Sir Michael Sobell House, Oxford University Hospitals NHS Trust, Oxford, UK

5. Nuffield Department of Medicine, University of Oxford, Oxford, UK

Abstract

Background: Informal carers face many challenges in caring for patients with palliative care needs. Selecting suitable valid and reliable outcome measures to determine the impact of caring and carers’ outcomes is a common problem. Aim: To identify outcome measures used for informal carers looking after patients with palliative care needs, and to evaluate the measures’ psychometric properties. Design: A systematic review was conducted. The studies identified were evaluated by independent reviewers (C.T.J.M., M.B., M.P.). Data regarding study characteristics and psychometric properties of the measures were extracted and evaluated. Good psychometric properties indicate a high-quality measure. Data sources: The search was conducted, unrestricted to publication year, in the following electronic databases: Applied Social Sciences Index and Abstracts, Cumulative Index to Nursing and Allied Health Literature, The Cochrane Library, EMBASE, PubMed, PsycINFO, Social Sciences Citation Index and Sociological Abstracts. Results: Our systematic search revealed 4505 potential relevant studies, of which 112 studies met the inclusion criteria using 38 carer measures for informal carers of patients with palliative care needs. Psychometric properties were reported in only 46% ( n = 52) of the studies, in relation to 24 measures. Where psychometric data were reported, the focus was mainly on internal consistency ( n = 45, 87%), construct validity ( n = 27, 52%) and/or reliability ( n = 14, 27%). Of these, 24 measures, only four (17%) had been formally validated in informal carers in palliative care. Conclusion: A broad range of outcome measures have been used for informal carers of patients with palliative care needs. Little formal psychometric testing has been undertaken. Furthermore, development and refinement of measures in this field is required.

Publisher

SAGE Publications

Subject

Anesthesiology and Pain Medicine,General Medicine

Reference209 articles.

1. World Health Organization (WHO). Definition palliative care, http://www.who.int/cancer/palliative/definition/en/ (accessed 21 August 2014).

2. World Health Organization (WHO) and World Palliative Care Alliance. Global atlas of palliative care at the end of life, http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf (2014, accessed August 2014).

3. Ferlay J, Soerjomataram I, Ervik M, GLOBOCAN 2012 v1.0: Cancer incidence and mortality worldwide. IARC CancerBase no. 11. Lyon: International Agency for Research on Cancer, http://globocan.iarc.fr (2013, accessed August 2014).

4. Where people die (1974—2030): past trends, future projections and implications for care

5. What Palliative Care Volunteers Would Like to Know About the Patients They Are Being Asked to Support

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3