Characterization and reliability of internet resources on pulmonary rehabilitation for individuals with chronic lung disease-Reference-Cited by-同舟云学术

Characterization and reliability of internet resources on pulmonary rehabilitation for individuals with chronic lung disease

Published:2023-01 Issue: Volume:20 Page:147997312311581
ISSN:1479-9731
Container-title:Chronic Respiratory Disease
language:en
Short-container-title:Chron Respir Dis

Author:

Da Silva Tania¹²,Lokhandwala Ashira²³,Al Kaabi Noor²⁴,Semenchuk Julie¹²,Goobie Gillian C⁵⁶,Camacho Encarna⁷,Reid W Darlene⁸⁹^ORCID,Fisher Jolene H⁷,Ryerson Christopher J⁵¹⁰,Rozenberg Dmitry²⁷¹¹^ORCID

Affiliation:

1. Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada

2. Toronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada

3. Schulich School of Medicine and Dentistry, Western University, London, ON, Canada

4. Institute of Medical Science, University of Toronto, Toronto, ON, Canada

5. Department of Medicine, University of British Columbia, Vancouver, BC, Canada

6. Department of Human Genetics, Graduate School of Public Health, University of Pittsburgh, Pittsburgh, PA, United States

7. Division of Respirology, Temerty Faculty of Medicine, University Health Network, University of Toronto, Toronto, ON, Canada

8. Department of Physical Therapy, University of Toronto, Toronto, ON, Canada

9. Interdepartmental Division of Critical Care Medicine, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada

10. Centre for Heart Lung Innovation, St. Paul’s Hospital, Vancouver, BC, Canada

11. Toronto Lung Transplant Program, Ajmera Transplant Centre, University Health Network, Toronto, ON, Canada

Abstract

Background Individuals with lung disease commonly use the internet as a source of health information on pulmonary rehabilitation (PR). The objective of this study was to characterize internet resources on PR, and to assess the content, readability, and quality of patient-directed PR resources. Methods The first 200 websites for the search term ‘pulmonary rehabilitation resources and exercise’ were analyzed on Google, Yahoo, and Bing. Website content was assessed based on 30 key components of PR from the 2013 and 2021 international consensus statements. Website quality was determined using DISCERN, JAMA benchmarks, and Global Quality Scale (GQS). Results 66 unique PR websites were identified with the two most common categories being scientific resources (39%) and foundation/advocacy organizations (33%). The average reading level of websites was 11 ± 3. PR content varied significantly across websites (mean range 13.4–21.5). Median DISCERN total score and GQS score were 4 (IQR 3-4) and 3.5 (IQR 2-4), respectively, representing moderate-good quality. Foundation/advocacy websites had higher DISCERN and GQS scores compared to other websites. Conclusion Foundation/advocacy websites had the highest quality and reliability metrics; however, the higher-than-recommended reading levels may compromise patient comprehension and utilization. This study provides critical insight on the current state of online PR health-related information.

Funder

Sandra Faire and Ivan Fecan Professorship in Rehabilitation Medicine

University of Toronto CREMS Summer Program

Publisher

SAGE Publications

Subject

Pulmonary and Respiratory Medicine

Link

http://journals.sagepub.com/doi/pdf/10.1177/14799731231158119

Reference35 articles.

1. An Official American Thoracic Society/European Respiratory Society Statement: Key Concepts and Advances in Pulmonary Rehabilitation

2. Defining Modern Pulmonary Rehabilitation. An Official American Thoracic Society Workshop Report