User involvement in research: Exploring the challenges

Abstract

This paper looks at the issue of user involvement in research and evaluation. It is related to current discussions about research governance and research ethics. The regressive and liberatory potential of user involvement in research is explored, together with the ideological relations of such research. Competing strands in its development and approach are identified. The assumption is challenged that user involvement in research is a monolithic idea. User-controlled research as well as user involvement in research is examined and a case is made for more equal access to funding for it. The paper calls for systematic development and evaluation of user involvement in research, both to identify its strengths and weaknesses and to support its most effective development.