Affiliation:
1. Department of Psychology, Mount Allison University, Sackville, NB, Canada
2. Department of Biology, Mount Allison University, Sackville, NB, Canada
Abstract
The goal of this study was to explore the experiences of individuals seeking care for long COVID-19 in the Canadian healthcare system. Recorded virtual interviews were carried out with 8 participants and narrative analysis was used to examine the stories produced and identify the central narratives that defined participants’ experiences. Care-seeking experiences were characterized by (1) often debilitating multi-system symptoms for which little information about prognosis was available and no effective treatments were provided, (2) compounded by the frustration of trying to convince family, friends, and health care practitioners of the legitimacy of their illness, (3) access to medical care was severely limited by the global pandemic and associated higher thresholds for care, (4) like others suffering from complex, multi-system conditions, people with long COVID are often struggling with a health-care system ill-suited for dealing with long-term and possibly chronic conditions. To make system-level improvements to better serve those with chronic conditions, it is critical that we understand the care-seeking experiences of chronic illness patients, including the unique experiences of those with long COVID.
Funder
New Brunswick Innovation Foundation
Subject
Health Policy,Health (social science),Leadership and Management
Reference24 articles.
1. Public Health Agency of Canada. Detailed preliminary information on cases of COVID-19, 2020-2022: 6-Dimensions (Aggregated data). Government of Canada, Statistics Canada. Accessed September 26, 2022. https://doi.org/10.25318/1310077401-ENG.
2. Post-COVID Syndrome: Incidence, Clinical Spectrum, and Challenges for Primary Healthcare Professionals
3. Factors Associated with Post-Acute Sequelae of SARS-CoV-2 (PASC) After Diagnosis of Symptomatic COVID-19 in the Inpatient and Outpatient Setting in a Diverse Cohort
4. World Health Organization. Innovative care for chronic conditions: Building blocks for action: global report. 2002. World Health Organization. Accessed September 26, 2022. https://www.who.int/publications/i/item/innovative-care-for-chronic-conditions-building-blocks-for-actions
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