Evaluating Differences in the Disease Experiences of Minority Adults With Cystic Fibrosis
Author:
Affiliation:
1. Department of Human Genetics, Emory University, Atlanta, GA, USA
2. Department of Medicine, Division of Pulmonary, Allergy, Critical Care and Sleep Medicine, Emory University, Atlanta, GA, USA
Abstract
Funder
Georgia Association of Genetic Counselors
Publisher
SAGE Publications
Subject
Health Policy,Health (social science),Leadership and Management
Link
http://journals.sagepub.com/doi/pdf/10.1177/23743735221112629
Reference29 articles.
1. Cystic fibrosis
2. Foundation CF. 2020 Annual Data Report. Cystic Fibrosis Foundation Patient Registry. 2021 (1).
3. Assessing Differences in Mortality Rates and Risk Factors Between Hispanic and Non-Hispanic Patients With Cystic Fibrosis in California
4. Disparities in Cystic Fibrosis Care and Outcome
5. Cystic fibrosis patients of minority race and ethnicity less likely eligible for CFTR modulators based on CFTR genotype
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1. The Lived Experience of African American Persons with Cystic Fibrosis;Creative Nursing;2023-11
2. Cystic Fibrosis: A Descriptive Analysis of Deaths in a Two-Decade Period in Brazil According to Age, Race, and Sex;Diagnostics;2023-02-17
3. Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences;Journal of Patient Experience;2023-01
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