Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma

Author:

Chan Chung M1ORCID,Lindsay Adam D.2,Spiguel Andre R V3,Parker Gibbs C.3,Scarborough Mark T3

Affiliation:

1. Division of Musculoskeletal Oncology, Department of Hand and Reconstructive Microsurgery, National University Hospital, National University Health System, Republic of Singapore

2. Department of Orthopaedic Surgery, University of Connecticut, Farmington, CT, USA

3. Division of Orthopaedic Oncology, Department of Orthopaedics and Rehabilitation, University of Florida, Gainesville, Florida, USA

Abstract

Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the procedure by patients who may be candidates for this procedure. We qualitatively studied the decision-making process of families of patients who had undergone rotationplasty by interviewing 4 patients and their families using semi-structured interviews. Thematic analysis identified the following themes that were important in the decision-making process: (1) the desire for good information sources, (2) finding value in meeting with other patients who had been faced with a similar decision, (3) prioritizing function over cosmesis, (4) a desire to limit the need for revision surgeries, and (5) accepting that a return to normalcy is not an option with a surgery. Physicians and patients faced with a similar decision can benefit from a better understanding of the process, and by the normalization of anxieties and concerns that they may experience.

Publisher

SAGE Publications

Subject

Health Policy,Health (social science),Leadership and Management

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