Use of a Person-Centered Narrative Intervention in an Outpatient Palliative Care Setting: A Feasibility Study

Author:

Coats Heather1ORCID,Shive Nadia1,Bennett C Robert2,Adrian Bonnie3,Boyd Andrew D45,Doorenbos Ardith Z67,Schmiege Sarah J8

Affiliation:

1. University of Colorado College of Nursing, Anschutz Medical Campus, Aurora, CO, USA

2. School of Medicine, University of Colorado, Anschutz Medical Campus, General Internal Medicine, Aurora, CO, USA

3. UCHealth University of Colorado Hospital, Aurora, CO, USA

4. Department of Biomedical and Health Information Sciences, University of Illinois Chicago, Chicago, IL, USA

5. UI Health, Chicago, IL, USA

6. University of Illinois Chicago, College of Nursing, Chicago, IL, USA

7. Cancer Prevention and Control Program, University of Illinois Cancer Center, Chicago, IL, USA

8. Department of Biostatistics and Informatics, Colorado School of Public Health, University of Colorado, Anschutz Medical Campus, Aurora, CO, USA

Abstract

Person-centered narrative interventions offer potential solutions to facilitate a connection between the person receiving care and the person delivering the care, to improve quality of care, and positively impact a patient's biopsychosocial well-being. This single-arm feasibility study investigates patient-reported outcomes and barriers/facilitators to the implementation of an all-virtually delivered person-centered narrative intervention into the person's electronic health record. Overall, electronic data collection for the patient-reported outcomes was feasible. All 15 participants felt participating in the study was “easy” and “enjoyable,” and “not a burden.” The facilitators of implementation included: “helpful to the clinician,” “appreciated looking at me as whole person,” “be seen and heard,” “had a connection and trust,” and “felt comfortable and relaxing.” The barriers to implementation included: “completing all the paperwork,” “being rushed for time to complete the PCNI,” and some “emotion” during collection of narrative. The use of person-centered narrative interventions is a way to deploy dedicated tools to shift dehumanized healthcare delivery to a more humanized person-centered care that treats people as experts in their own life narratives by incorporating their beliefs, values, and preferences into their plan of care.

Funder

National Institutes of Health

Cambia Health Foundation

National Center for Advancing Translational Sciences

Publisher

SAGE Publications

Subject

Health Policy,Health (social science),Leadership and Management

Reference22 articles.

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2. Narrative Inquiry

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