Development of GO Move: A Website for Children With Unilateral Cerebral Palsy

Author:

Shierk Angela12ORCID,Roberts Heather13,Habeeb Youstina3,Dursun Nigar4,Cekmece Cigdem4,Bonikowski Marcin5,Pyrzanowska Weronika5,Carranza Jorge6,Granados Garcia Gabriela7,Clegg Nancy1,Delgado Mauricio R.12

Affiliation:

1. Scottish Rite for Children, Dallas, TX, USA

2. University of Texas Southwestern Medical Center, Dallas, TX, USA

3. Texas Woman’s University, Denton, USA

4. Kocaeli University, Izmit, Turkey

5. Mazovian Neuropsychiatry Center, Warsaw, Poland

6. Hospital San José de Celaya, Mexico

7. Universidad Teleton, Mexico City, Mexico

Abstract

It is unknown if an online tool is wanted by therapists and parents of individuals with unilateral cerebral palsy (UCP) to support implementation of goal-directed home programs, and if wanted, the recommended features for the tool. The objective was to explore the experiences of therapists and parents who have implemented home programs, seek guidance on translating a paper-based home program toolbox into a mobile website, and develop the website. Qualitative descriptive methodology guided data collection using semi-structured interviews and thematic analysis, validated with field notes and member checking. A team science, iterative approach was used to integrate the themes into the development of the mobile website. Five primary themes including recommendations for the functionality, features, content, and naming of the mobile website were identified. Parents and therapists value home programs. Participants provided recommendations regarding content and features, and the GO Move mobile website was developed based on the recommendations.

Funder

Ipsen Education Grant

Publisher

SAGE Publications

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