Catalyzing Research to Optimize Cancer Survivors’ Participation in Work and Life Roles

Author:

Newman Robin M.1,Alfano Catherine M.2,Radomski Mary Vining3,Pergolotti Mackenzi4,Wolf Timothy J.5,Sleight Alix G.6,Bryant Ashley Leak7,Voelbel Gerald T.8,de Moor Janet S.9,Nitkin Ralph10,Daniels Elvan11,Braveman Brent12,Walker Rachel K.13,Williams Grant R.14,Winters-Stone Kerri M.15,Cheville Andrea L.16,Campbell Scott E.17,Lawlor Mary C.18,King Allison A.19ORCID,Ness Kirsten K.20,Srivastava Piyush21,Lyons Kathleen Doyle22

Affiliation:

1. Boston University, MA, USA

2. American Cancer Society Inc., Washington, DC, USA

3. Courage Kenny Research Center, Minneapolis, MN, USA

4. ReVital Cancer Rehabilitation, Select Medical, Mechanicsburg, PA, USA

5. University of Missouri, Columbia, USA

6. National Cancer Institute, Rockville, MD, USA

7. The University of North Carolina at Chapel Hill, USA

8. New York University, New York City, USA

9. National Cancer Institute, Bethesda, MD, USA

10. Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, MD, USA

11. American Cancer Society Inc., Atlanta, GA, USA

12. MD Anderson Cancer Center, Houston, TX, USA

13. University of Massachusetts, Amherst, USA

14. The University of Alabama at Birmingham, USA

15. Oregon Health & Science University, Portland, USA

16. Mayo Clinic, Rochester, MN, USA

17. American Occupational Therapy Foundation, Bethesda, MD, USA

18. University of Southern California, Los Angeles, USA

19. Washington University in St. Louis, MO, USA

20. St. Jude Children’s Research Hospital, Memphis, TN, USA

21. The Permanente Medical Group, Oakland, CA, USA

22. Dartmouth-Hitchcock Medical Center, Lebanon, NH, USA

Abstract

Participation refers to a state of health in which a person is able to fully engage in roles and life situations. Adults living with and beyond cancer often report persistent participation restrictions that affect their productivity and quality of life. The American Occupational Therapy Foundation convened a group of scientists from seven different disciplines in a Planning Grant Collective (PGC) to stimulate research to identify scalable ways to preserve and optimize participation among cancer survivors. Participants identified challenges, prioritized solutions, and generated novel research questions that move beyond symptom and impairment mitigation as outcomes to identify interventions that improve participation in roles and life situations. This article summarizes the PGC discussion and recommendations regarding three challenges: (a) the dynamic and multi-faceted nature of participation, (b) a need to integrate the concept of participation within the culture of oncology, and (c) identification of priority areas in which new lines of research regarding participation would be most impactful.

Funder

American Occupational Therapy Foundation

Publisher

SAGE Publications

Subject

Occupational Therapy

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