Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review-Reference-Cited by-同舟云学术

Ethical Considerations for Engaging Children and Adolescents Living with HIV in Research in African Countries: A Systematic Review

Published:2023-10-23 Issue:5 Volume:18 Page:346-362
ISSN:1556-2646
Container-title:Journal of Empirical Research on Human Research Ethics
language:en
Short-container-title:Journal of Empirical Research on Human Research Ethics

Author:

Gillette Emma¹,Nyandiko Winstone²³,Chory Ashley¹,Scanlon Michael⁴,Aluoch Josephine³,Choudhury Nandini¹,Lagat Daniel³,Ashimosi Celestine³,Biegon Whitney³,Munyoro Dennis³,Lidweye Janet³,Nyagaya Jack³,Wilets Ilene¹,DeLong Allison⁵,Kantor Rami⁵,Vreeman Rachel¹^ORCID,Naanyu Violet²³

Affiliation:

1. Department of Global Health and Health Systems Design, Icahn School of Medicine at Mount Sinai, New York, NY, USA

2. Moi University College of Health Sciences, Eldoret, Kenya

3. Academic Model Providing Access to Healthcare (AMPATH), Eldoret, Kenya

4. Indiana University Center for Global Health, Indianapolis, Indiana, USA

5. Brown University, Providence, RI, USA

Abstract

Research engaging children and adolescents living with HIV (CALWH) is critical for youth-friendly services and HIV care, and researchers need to ensure that such engagement is ethical. We conducted a systematic review to identify key ethical considerations for the engagement of CALWH in research. The review focused on primary research articles conducted in African countries that examined ethical issues in CALWH engaged in research. Ten studies met the inclusion criteria; the following seven key domains were extracted: 1) justifications for engaging CALWH in research; 2) community involvement; 3) informed consent/assent; 4) caregiver involvement; 5) perceptions of benefits; 6) perception of the risks of involvement; and 7) confidentiality. These domains can inform the ethical engagement of CALWH in research.

Funder

National Institute of Allergy and Infectious Diseases

Publisher

SAGE Publications

Subject

Communication,Education,Social Psychology

Link

http://journals.sagepub.com/doi/pdf/10.1177/15562646231208991

Reference59 articles.

1. Act C. C. Act 74 of 1983. Government Gazette(9765).

2. Informed consent comprehension in African research settings

3. An adapted instrument to assess informed consent comprehension among youth and parents in rural western Kenya: a validation study

4. PARTICIPANTS' PERCEPTIONS OF RESEARCH BENEFITS IN AN AFRICAN GENETIC EPIDEMIOLOGY STUDY

5. Avert. (2020). Children, HIV and AIDS. Retrieved from avert.org: https://www.avert.org/professionals/hiv-social-issues/key-affected-populations/children.