Researchers’ Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study

Author:

Mwaka Erisa12ORCID,Horn Lyn3

Affiliation:

1. Makerere University College of Health Sciences, Kampala, Uganda

2. University of Kwazulu-Natal, Durban, South Africa

3. University of Cape Town, South Africa

Abstract

There is limited literature on the opinions and perspectives of researchers on the ethical issues in biobank research in South Africa. This study aimed to explore researchers’ perspectives on informed consent and ethical review of biobank research in South Africa. An online survey was conducted among researchers and scientists at Stellenbosch University and the University of Kwazulu-Natal. The majority of researchers opined that broad consent is appropriate for biobank research. However, there was no consensus on the necessity for re-consent. Researchers were also in agreement that issues concerning informed consent and future use of samples require thorough discussions during the ethical review process. Overall, the attitude of researchers on informed consent and ethical review of biobank research was positive and ethically informed.

Funder

Fogarty International Center

Publisher

SAGE Publications

Subject

Communication,Education,Social Psychology

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