A Qualitative Study of the Limits and Possibilities of Integrating Palliative Care in Heart Failure

Author:

Santos Karoliny Alves1ORCID,Trotte Liana Amorim Corrêa1,Telles Audrei12,Guimarães Tereza Cristina3,Sá Eunice45,Miranda da Silva Marcelle15ORCID

Affiliation:

1. Universidade Federal do Rio de Janeiro, Escola de Enfermagem Anna Nery, Rio de Janeiro, Brazil

2. Instituto Nacional de Câncer José Alencar Gomes da Silva, Rio de Janeiro, Brazil

3. Instituto Nacional de Cardiologia, Rio de Janeiro, Brazil

4. Nursing School of Lisbon, Lisbon, Portugal

5. Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Lisbon, Portugal

Abstract

Heart failure is a progressive condition with a high burden of symptoms and clinical decompensations that causes psychological and social suffering, poor quality of life, and limited life expectancy. Therefore, it requires palliative care to control symptoms and signs, but integrating it with clinical care is complicated. We aimed to discuss the limits and possibilities of integrating palliative care in heart failure. This was a qualitative descriptive study. Semi-structured qualitative interviews were carried out between July 2020 and July 2021. We applied the thematic content analysis and the SWOT matrix. Ethical principles were respected. Ten professionals from an Institute specializing in cardiovascular diseases in Rio de Janeiro, Brazil, participated in the study, including physicians, nurses, psychologist, and occupational therapist. We identified 4 categories related to intervening factors: the patient’s profile, the emotional aspects of professionals facing these patients, the challenges to integrating and sustaining palliative care in practice, and the ways for assistance planning in this context. The existence of a specialized team, the palliative care commission, and the institutional palliative care protocol, aligned with the realistic perception of the assistance, organizational, political, and social problems, may promote the advancement of palliative care in heart failure.

Funder

Nursing Research, Innovation and Development Centre of Lisbon

Publisher

SAGE Publications

Subject

Health Policy

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