Provincial development of a patient-reported outcome initiative to guide patient care, quality improvement, and research

Author:

Olson Robert A.123ORCID,Howard Fuchsia2,Lapointe Vincent4,Schellenberg Devin45,Nichol Alan4,Bowering Gale6,Curtis Susan5,Walter Allison4,Brown Steven1,Thompson Corinne7,Bergin Jackie7,Lomas Sheri4,French John4,Halperin Ross7,Tyldesley Scott4,Beckham Wayne8

Affiliation:

1. BC Cancer Agency, Centre for the North, Prince George, British Columbia, Canada.

2. Department of Surgery, Division of Radiation Oncology, University of British Columbia, Vancouver, British Columbia, Canada.

3. Department of Interdisciplinary Studies, University of Northern British Columbia, Prince George, British Columbia, Canada.

4. BC Cancer Agency, Vancouver Centre, Vancouver, British Columbia, Canada.

5. BC Cancer Agency, Fraser Valley Centre, Surrey, British Columbia, Canada.

6. BC Cancer Agency, Abbotsford Centre, Abbotsford, British Columbia, Canada.

7. BC Cancer Agency, Centre for the Southern Interior, Kelowna, British Columbia, Canada.

8. BC Cancer Agency, Vancouver Island Centre, Victoria, British Columbia, Canada.

Abstract

The BC Cancer Agency Radiotherapy (RT) program started the Prospective Outcomes and Support Initiative (POSI) at all six centres to utilize patient-reported outcomes for immediate clinical care, quality improvement, and research. Patient-reported outcomes were collected at time of computed tomography simulation via tablet and 2 to 4 weeks post-RT via either tablet or over the phone by a registered nurse. From 2013 to 2016, patients were approached on 20,150 attempts by POSI for patients treated with RT for bone metastases (52%), brain metastases (11%), lung cancer (17%), gynecological cancer (16%), head and neck cancer (2%), and other pilots (2%). The accrual rate for all encounters was 85% (n = 17,101), with the accrual rate varying between the lowest and the highest accruing centre from 78% to 89% ( P < .001) and varying by tumour site ( P < .001). Using the POSI database, we have performed research and quality improvement initiatives that have changed practice.

Funder

Varian Medical Systems

Publisher

SAGE Publications

Subject

Health Policy

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