Baby Doe and the Search for a Quality Life

Abstract

Recent “Baby Doe” decisions and governmental rules have prompted a review of the quality of life afforded infants with severe handicaps. Several disciplines (psychology, education, social services) have been actively engaged in searching for methodology, technology, and service delivery models to improve the life experienced by these in/ants. This search has focused on work along several dimensions of a quality life, including educability, relationships, residence, access, and technology. It is critical for those making treatment decisions to be aware of advances that will help afford an improved quality of life to infants with severe handicaps. It is our duty to further these advances and make them more known to decision makers and the general public.