People with Usher Syndrome, Type II: Issues and Adaptations

Abstract

People with Usher syndrome, Type II, were born hard-of-hearing and undergo the progressive loss of vision from adolescence onward—changes that require multiple adaptations. This article describes what they experience in childhood, adolescence, and adulthood; discusses the lack of appropriate services and the failure of professionals to provide sufficient information on the condition; and stresses the importance of access to information and the acquisition of new skills as early as possible before the visual impairment becomes severe.