Creating an effective clinical registry for rare diseases-Reference-Cited by-同舟云学术

Creating an effective clinical registry for rare diseases

Published:2015-11-13 Issue:3 Volume:4 Page:333-338
ISSN:2050-6406
Container-title:United European Gastroenterology Journal
language:en
Short-container-title:United European Gastroenterology Journal

Author:

D’Agnolo Hedwig MA¹,Kievit Wietske²,Andrade Raul J³⁴,Karlsen Tom Hemming⁵,Wedemeyer Heiner⁶,Drenth Joost PH¹

Affiliation:

1. Department of Gastroenterology and Hepatology, Radboud University, Medical Centre Nijmegen, Nijmegen, The Netherlands

2. Radboud Institute for Health Sciences, Radboud University Medical Centre, Nijmegen, The Netherlands

3. Institute for Biomedical Research of Malaga (IBIMA), Virgen de la Victoria [Virgin of Victory] University Hospital and School of Medicine, Malaga, Spain

4. Instituto de Investigación Biomédica de Málaga-IBIMA, Hospital Universitario Virgen de la Victoria, Universidad de Málaga, Unidad de Gestión Clínica de Aparato Digestivo; Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd. Málaga, Spain)

5. Department of Transplantation Medicine; Division of Cancer Medicine, Surgery and Transplantation; Oslo University Hospital, Oslo, Norway

6. Department of Gastroenterology, Hepatology and Endocrinology, Hannover Medical School, Hannover, Germany

Publisher

Wiley

Subject

Gastroenterology,Oncology

Link

http://journals.sagepub.com/doi/pdf/10.1177/2050640615618042

Reference27 articles.

1. Registries for Robust Evidence

2. Diagnosis and management of polycystic liver disease

3. Systematic review: the pathophysiology and management of polycystic liver disease

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