A Visual-Analogue Screening Tool for Assessing Mood and Quality of Daily Life Complications in Family Members of People Living With Cancer: Portuguese Version of the Emotion Thermometers: Burden Version

Author:

Areia Neide P.1ORCID,Mitchell Alex2,Fonseca Gabriela3,Major Sofia4,Relvas Ana P.3

Affiliation:

1. Centre for Social Studies, University of Coimbra, Coimbra, Portugal

2. Leicester Cancer Research Centre, University of Leicester, Leicester, United Kingdom

3. Faculty of Psychology and Education Science, University of Coimbra, Coimbra, Portugal

4. Faculty of Social Sciences and Humanities, University of Azores, Ponta Delgada, Portugal

Abstract

Cancer is a disease that impacts not only the patient but also affects the entire family. Family members experience high levels of distress. Therefore, screening for cancer-specific distress among family members of people with cancer is important but relatively unexplored. This cross-sectional study aims to analyze the psychometric properties of a screening tool for family members of people with cancer. We examined the usefulness of the emotional thermometers burden version (ET-BV) in detecting caregiver emotional distress. The ET-BV is a simple multidomain visual analogue scale distributed in two major domains: “emotional upset” and “impact.” A total of 364 cancer patients’ family members completed the ET-BV and Brief Symptom Inventory. Analyses were aimed to examine the diagnostic accuracy (receiver operating characteristic) of the ET-BV. A fair to good diagnostic accuracy was achieved for ET-BV. For emotional upset thermometers, a cutoff of ≥5 was determined and for impact thermometers, a cutoff of ≥4 was established. ET-BV seems to be a useful, quick, and simple tool for distress screening in family members of people with cancer. A revision of a specific thermometer is discussed in order to increase ET screening performance and clinical utility.

Funder

Fundação para a Ciência e a Tecnologia

Publisher

SAGE Publications

Subject

Health Policy

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