UK consensus guidelines for the delivery of unexpected news in obstetric ultrasound: The ASCKS framework

Author:

Johnson Judith123ORCID,Arezina Jane4,Tomlin Liz5ORCID,Alt Siobhan6,Arnold Jon7,Bailey Sarah8,Beety Hannah9,Bender-Atik Ruth10ORCID,Bryant Louise11,Coates Jen12,Collinge Sam13,Fishburn Jo14,Fisher Jane15,Fowler Jan16,Glanville Tracey17,Hallett Julian18,Harley-Roberts Ailith19,Harrison Gill20,Horwood Karen21,Hynes Catriona22,Kimm Lindsay23,McGuinness Alison24ORCID,Potter Lucy2526,Powell Liane6,Ramsay Janelle27,Shakes Pieta28,Sicklen Roxanne29,Sims Alexander30,Stacey Tomasina3132,Sumra Anushka33,Thomas Samantha34ORCID,Todd Karen35,Torrington Jacquie36ORCID,Trueman Rebecca10,Walsh Lorraine37,Watkins Katherine38,Yaz Gill39,Hardicre Natasha K2

Affiliation:

1. School of Psychology, University of Leeds, Leeds, UK

2. Yorkshire Quality and Safety Research Group, Bradford Institute for Health Research, Bradford Teaching Hospitals NHS Foundation Trust, Bradford Royal Infirmary, Bradford, UK

3. University of New South Wales, Sydney, NSW, Australia

4. Specialist Science Education Department (SSED), Leeds Institute of Cardiovascular and Metabolic Medicine, School of Medicine, Worsley Building, University of Leeds, Leeds, UK

5. Bradford Teaching Hospitals NHS Foundation Trust, Bradford Royal Infirmary, Bradford, UK

6. NHS Fetal Anomaly Screening Programme, Public Health England, London, UK

7. Tiny Tickers, Leeds, UK

8. University Hospitals Southampton NHS Foundation Trust, Southampton, UK

9. Nest Independent Midwifery, Kirkstall, Leeds, UK

10. The Miscarriage Association, Wakefield, UK

11. Division of Psychological & Social Medicine, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK

12. SANDS (Stillbirth and Neonatal Death Society), London, UK

13. University Hospitals Coventry and Warwickshire NHS Trust, Coventry, UK

14. Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, North Shields, UK

15. ARC (Antenatal Results and Choices), London, UK

16. SOFT UK (Support Organisation for Trisomy 13/18), West Midlands, UK

17. Leeds Teaching Hospitals Trust, Department of Fetal and Maternal Medicine, Leeds General Infirmary, Leeds, UK

18. The Down’s Syndrome Association, London, UK

19. Sunshine & Smiles – Leeds Down Syndrome Network, Leeds, UK

20. Society and College of Radiographers, London, UK

21. Independent Lay Expert, Leeds, West Yorkshire, UK

22. College of Health, Wellbeing and Life Sciences, Sheffield Hallam University, Sheffield, UK

23. Public Health England (PHE) Screening, London, UK

24. Mid Yorkshire Hospitals NHS Trust, West Yorkshire, UK

25. MVP (Maternity Voices Partnership), Leeds, UK

26. Women’s Health Matters, Leeds, UK

27. Independent Lay Expert, Huddersfield, West Yorkshire, UK

28. School of Health and Human Sciences, Southern Cross University, New South Wales, Australia

29. Royal Free London NHS Foundation Trust, Barnet Hospital, Barnet, UK

30. St Mary’s Hospital, Manchester University Foundation Trust, Manchester, UK

31. University of Huddersfield, Huddersfield, UK

32. Calderdale and Huddersfield Foundation Trust, University of Huddersfield, Huddersfield, UK

33. School of Health Sciences, Birmingham City University, Edgbaston, UK

34. Sydney School of Health Sciences, Faculty of Medicine and Health, University of Sydney, New South Wales, Australia

35. Department of Health and Social Care, London, UK

36. Division of Midwifery and Radiography, School of Health Sciences, City, University of London, London, UK

37. Birmingham Children’s Hospital, Birmingham, UK

38. Leeds Teaching Hospital Trust, Leeds General Infirmary, Antenatal Clinic, Leeds, UK

39. SHINE (Spina Bifida, Hydrocephalus, Information, Networking, Equality), Peterborough, UK

Abstract

Background Studies indicate there is a need to improve the delivery of unexpected news via obstetric ultrasound, but there have been few advances in this area. One factor preventing improvement has been a lack of consensus regarding the appropriate phrases and behaviours which sonographers and ultrasound practitioners should use in these situations. Aims To develop consensus guidelines for unexpected news delivery in Early Pregnancy Unit and Fetal Anomaly Screening Programme NHS settings. Methods A workshop was conducted to identify priorities and reach consensus on areas of contention. Contributors included interdisciplinary healthcare professionals, policy experts, representatives from third-sector organisations, lay experts and academic researchers ( n = 28). Written and verbal feedback was used to draft initial guidance which was then circulated amongst the wider writing group ( n = 39). Revisions were undertaken until consensus was reached. Results Consensus guidelines were developed outlining the behaviours and phrases which should be used during scans where unexpected findings are identified. Specific recommendations included that: honest and clear communication should be prioritised, even with uncertain findings; technical terms should be used, but these should be written down together with their lay interpretations; unless expectant parents use other terminology (e.g. ‘foetus’), the term ‘baby’ should be used as a default, even in early pregnancy; at the initial news disclosure, communication should focus on information provision. Expectant parents should not be asked to make decisions during the scan. Conclusions These recommendations can be used to develop and improve news delivery interventions in obstetric ultrasound settings. The full guidelines can be accessed online as supplemental material and at https://doi.org/10.5518/100/24 .

Funder

Society and College of Radiographers

NIHR CLAHRC

NIHR Y&H PSTRC

Publisher

SAGE Publications

Subject

Radiology, Nuclear Medicine and imaging,Radiological and Ultrasound Technology

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