Local Autism Policy Networks: Expertise and Intermediary Organizations

Abstract

The increasing prevalence of diagnoses for autism spectrum disorder (ASD), now one in 68 children according to the National Institutes of Health (NIH), presents a number of policy implications. In particular, many of these children become eligible for special education services under the Individuals With Disabilities Education Act (IDEA). Given the specialized expertise and resources required of local education agencies (LEAs), how do they respond to this implementation challenge? In May 2015, an online survey was distributed to various governmental and nongovernmental actors in three Virginia localities to measure the extent of collaboration in local autism policy networks. The findings suggest that these networks are driven by autism-related information, and that nonprofit organizations act as intermediary organizations that bridge disparate stakeholders. The results contribute to our understanding of fragmentation across policy subsystems, with the focus here on education policy, and the implementation challenges related to a rapidly changing policy issue.