Closing the Loop on Centralization of Cleft Care in the United Kingdom

Author:

Ness Andrew R.12,Wills Andrew R.2,Waylen Andrea2,Smallridge Jackie3,Hall Amanda J.4,Sell Debbie5,Sandy Jonathan R.6

Affiliation:

1. Biomedical Research Unit in Nutrition, Diet and Lifestyle, National Institute for Health Research, University Hospitals Bristol NHS Foundation Trust, Bristol, United Kingdom

2. Bristol Dental School, University of Bristol, Bristol, United Kingdom

3. Cleft Net East Cleft Network, Addenbrooke's Hospital, Cambridge, United Kingdom

4. Children's Hearing Centre, St Michael's Hospital, University Hospitals Bristol NHS Foundation Trust, Bristol, United Kingdom

5. North Thames Regional Cleft Service, Speech and Language Therapy Department and Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID), Great Ormond Street Hospital NHS Foundation Trust, London, UK

6. Dean of Faculty of Health Sciences, University of Bristol, Bristol, United Kingdom

Abstract

Objective: We highlight a major study that investigated the impact of reconfigured cleft care in the United Kingdom some 15 years after centralization. We argue that centralization as an intervention has a major impact on outcomes. Setting: Audit clinics held in Cleft Centers in the United Kingdom. Patients, Participants: Five-year-olds born between April 1, 2005, and March 31, 2007, with nonsyndromic unilateral cleft lip and palate. Interventions: Centralization of cleft care. Main Outcome Measure(s): We collected routine clinical measures (speech recordings, hearing, photographs, models, oral health, psychosocial factors) in a very similar way to a previous survey. Results: We identified 359 eligible children and recruited 268 (74.7%) to the study. Overall, their outcomes were better post-centralization. There have been marked improvements in dentoalveolar arch relationships and in speech whereas the prevalence of dental caries and hearing loss are unchanged. Conclusions: Centralized cleft care has changed UK outcomes considerably and there is no argument for returning to a dispersed model of treatment.

Publisher

SAGE Publications

Subject

Otorhinolaryngology,Oral Surgery

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