Sustainable Cleft Care: A Comprehensive Model Based on the Global Smile Foundation Experience

Author:

Chahine Elsa M.1ORCID,Kantar Rami S.12ORCID,Kassam Serena N.3456ORCID,Vyas Raj M.7,Ghotmi Lilian H.1,Haddad Anthony G.18ORCID,Hamdan Usama S.191011

Affiliation:

1. Global Smile Foundation, Norwood, MA, USA

2. Department of Surgery, University of Maryland Medical System, Baltimore, USA

3. Dental and Pre-Surgical Division, Global Smile Foundation, Norwood, MA, USA

4. Department of Pediatric Dentistry, New York University College of Dentistry, New York, NY, USA

5. Division of Pediatric Dentistry, Faculty of Dentistry, University of British Columbia, Vancouver, British Columbia, Canada

6. Department of Pediatric Dentistry, BC Children’s Hospital, Vancouver, British Columbia, Canada

7. Department of Plastic Surgery, University of California Irvine, Irvine, CA, USA

8. Department of Surgery, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, USA

9. Otolaryngology, Tufts University School of Medicine, Boston, MA, USA

10. Otology and Laryngology, Harvard Medical School, Boston, MA, USA

11. Otolaryngology, Boston University School of Medicine, Boston, MA, USA

Abstract

Introduction: Clefts of the lip and palate are leading congenital facial anomalies. Underserved patients with these facial differences lack access to medical care, surgical expertise, prenatal care, or psychological support. Moreover, the disease results in significant economic strains on patients and their families. While surgical outreach programs have attempted to fill this void, significant challenges facing international comprehensive cleft care persist. Objective: Propose a path toward international sustainable cleft care based on the Global Smile Foundation experience. Results: International sustainable comprehensive cleft care can be achieved by regulating surgical outreach programs. Regulation of these missions would ensure standardized care and encourage stakeholders to cooperate and adequately allocate funding and resources. Capacity building can be achieved through “diagonal” cleft care delivery models, multidisciplinary workshops, fellowship programs, research and quality assurance, as well as leveraging emerging technologies such as Augmented Reality. Conclusion: International comprehensive cleft care requires continuous collaborative efforts between visiting and local teams as well as international and national organizations. Standardizing and regulating current practices as well as promoting capacity building initiatives can contribute to sustainable cleft care.

Publisher

SAGE Publications

Subject

Otorhinolaryngology,Oral Surgery

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