Perspectives on traditional and emerging mobility aids amongst Australians with inherited retinal disease

Abstract

Over the past decade, there has been increasing interest in advanced secondary mobility aids for people with low vision, such as sensory substitution devices (SSDs) and electronic travelling aids (ETAs). However, these new modalities have not been able to reach end-users in significant numbers. We conducted an online survey to investigate the current uptake of mobility aids, as well as perspectives on emerging technologies from people with inherited retinal disease (IRD). The cross-sectional survey received 74 complete responses from Australians that self-reported as legally blind from IRD. Approximately half (57%) of respondents were aged over 55 years, with the cohort exhibiting above average education levels (with half holding a bachelor’s degree or above). Long canes (54%) are currently the most used primary mobility aids in this cohort. However, around half of the respondents have used ETAs or SSDs (51 %) for additional help. Respondents reported that their choice of mobility aid was often based on whether they were in a familiar or unfamiliar environment. Most respondents showed interest in SSDs, but were concerned about usability and aesthetics. This cohort of people living with IRD in Australia was interested in advanced technologies and showed willingness to try novel mobility aids if the device was easy to use and the quality of training was guaranteed. Respondents indicated a preference for devices which were portable, and had a minimally intrusive form-factor. Our results can inform the research and development of emerging assistive devices. They serve as valuable guidance for selecting aids tailored to the needs of individuals with visual impairments. Future assessments on the effectiveness of low vision aids should include not only the functional improvement, but also participant-reported assessments regarding usability and portability, as these aspects dictate integration of the device into regular use.