Payments for research participation: Don’t tax the Guinea pig

Author:

Rand Leah Z12ORCID,Kesselheim Aaron S12

Affiliation:

1. Program On Regulation, Therapeutics, And Law (PORTAL), Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women’s Hospital and Harvard Medical School, Boston, MA, USA

2. Center for Bioethics, Harvard Medical School, Boston, MA, USA

Abstract

Under current US statute, payments to research participants are taxable income. This means that even though institutional review boards and researchers agree to specific payment amounts to account for the burden of research, participants are paid less than anticipated, and participants’ net payment will vary depending on their home state. Unlike other entities in the research enterprise, who receive incentivizing tax exemptions and credits, research participation is tax dis-incentivized. In addition, incentives and rewards for other socially valuable activities are not taxed. Given these differences and the restrictions on research payments, it is unfair to tax participants on their payments and the statue should be revised.

Funder

Arnold Ventures

Publisher

SAGE Publications

Subject

Pharmacology,General Medicine

Reference26 articles.

1. A Framework for Ethical Payment to Research Participants

2. What's the Price of a Research Subject? Approaches to Payment for Research Participation

3. Public Law 111–255, 111th Congress. To provide for an exclusion under the Supplemental Security Income program and the Medicaid program for compensation provided to individuals who participate in clinical trials for rare diseases or conditions, 2010, https://www.govinfo.gov/content/pkg/PLAW-111publ255/html/PLAW-111publ255.htm

4. Internal Revenue Service. National office technical advice memorandum, Uniform Issue List Nos.: 3121.04-01, 3306.05.00, 3401.04-02, 1990, https://www.irs.gov/pub/irs-wd/0437030.pdf

5. Human Research Affairs/Research Management. Payments to human subjects for participation in research. Boston, MA: Partners Healthcare, 2007, https://www.fda.gov/regulatory-information/search-fda-guidance-documents/payment-and-reimbursement-research-subjects

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