Data Sharing

Author:

Bergren Martha Dewey1ORCID,Johnson Kathleen2ORCID

Affiliation:

1. Director, Advanced Population Health, Health Systems Leadership and Informatics, University of Illinois, Chicago, IL

2. Assistant Professor, University of Washington, Seattle, WA

Abstract

The data life cycle starts with defining what data are needed, to collecting, storing, protecting, using, sharing, retiring, and destroying data. A May 2019 NASN School Nurse article, “Data Governance and Stewardship,” addressed who is accountable for the data life cycle within a school system. This article will discuss data sharing, the ethics, and the steps that must be taken to share data responsibly. As discussed in the previous article, policies and procedures about data sharing are available in every school district. Frequently, the guidelines pertain only to sharing personally identifiable student information and do not address the sharing of aggregated information for the purposes of needs assessments, priority setting, outcomes measurement, or for advocating for resources or policy changes at the district, state, or national level. Fortunately, guidance of sharing data and crafting data sharing agreements is provided by the Privacy Technical Assistance Center at the U.S. Department of Education. This is the sixth article in the series on data.

Publisher

SAGE Publications

Subject

General Medicine

Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1.

Biomedical Data Sharing Among Researchers: A Study from Jordan

;Journal of Multidisciplinary Healthcare;2020-11

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