Achieving a Representative Sample of Asian Americans in Biomedical Research Through Community-Based Approaches: Comparing Demographic Data in theAll of UsResearch Program With the American Community Survey

Author:

Randal Fornessa T.1,Lozano Paula2ORCID,Qi Siya1,Maene Chieko1,Shah Sameep2,Mo Yicklun1,Ratsimbazafy Francis3,Boerwinkle Eric4,Cicek Mine5,Clark Cheryl R.6,Cohn Elizabeth7,Gebo Kelly8,Loperena Roxana3,Mayo Kelsey3,Mockrin Stephen9,Ohno-Machado Lucila10,Schully Sheri9,Ramirez Andrea H.3,Aschebrook-Kilfoy Briseis2,Ahsan Habibul2,Lam Helen2,Kim Karen E.2

Affiliation:

1. Asian Health Coalition, Chicago, IL, USA

2. The University of Chicago, IL, USA

3. Vanderbilt University Medical Center, Nashville, TN, USA

4. The University of Texas Health Science Center at Houston, USA

5. Mayo Clinic, Rochester, MN, USA

6. Brigham and Women’s Hospital, Boston, MA, USA

7. City University of New York, New York City, USA

8. Johns Hopkins University School of Medicine, Bethesda, MD, USA

9. National Institutes of Health, Bethesda, MD, USA

10. UC San Diego Health, CA, USA

Abstract

Background:Underrepresented persons are often not included in biomedical research. It is unknown if the general Asian American population is being represented in All of Us. The purpose of this study was to compare the Asian demographic data in the All of Us cohort with the Asian nationally representative data from the American Community Survey.Method:Demographic characteristics and health literacy of Asians in All of Us were examined. Findings were qualitatively compared with the Asian data in the 2019 American Community Survey 1-year estimate.Results:Compared with the national composition of Asians, less All of Us participants were born outside the United States (64% vs 79%), were younger, and had higher levels of education (76% vs 52%). Over 60% of All of Us participants reported high levels of health literacy.Conclusion:This study had implications for the development of strategies that ensure diverse populations are represented in biomedical research.

Funder

National Institute of Health

Publisher

SAGE Publications

Subject

General Nursing

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