Patient, Family Caregiver, and Nurse Involvement in End-of-Life Discussions During Palliative Chemotherapy: A Phenomenological Hermeneutic Study

Author:

Ikander Tine1234ORCID,Dieperink Karin B.134ORCID,Hansen Olfred14,Raunkiær Mette24

Affiliation:

1. Department of Oncology, Academy of Geriatric Cancer Research (AgeCare), Odense University Hospital, Denmark

2. REHPA, Danish Knowledge Centre of Rehabilitation and Palliative Care, Odense University Hospital, Denmark

3. Family-focused healthcare research Centre (FaCe). Department of Clinical Research, University of Southern Denmark

4. Department of Clinical Research, University of Southern Denmark

Abstract

The aim of this study was to investigate current nursing practice related to end-of-life discussions with incurable lung cancer patients and their family caregivers from the perspectives of patients, family caregivers, and nurses in an oncology outpatient clinic. This phenomenological hermeneutic study included nine patients, eight family caregivers, and 11 nurses. Data were collected using participant observation, informal and semi-structured individual or joint interviews with patients and family caregivers, and focus group interviews with nurses. A Ricoeur-inspired approach was used to analyze the data. Three themes were identified: (a) content of end-of-life discussions, (b) timing of end-of-life discussions, and (c) challenges in end-of-life discussions. End-of-life discussions were seldom initiated; when they were, it was often too late. Discussions addressed treatment, place of care, practical/economic concerns, and existential matters. The physical environment at the outpatient clinic, lack of continuity, and nurses’ instrumental task workloads and time pressure posed challenges to initiating end-of-life discussions.

Funder

Department of Oncology, Odense University Hospital, Denmark

Aage Theodor Larsen fund of Cancer Research

Academy of Geriatric Cancer Research

Kræftens Bekæmpelse

The Region of Southern Denmark

Publisher

SAGE Publications

Subject

Family Practice,Community and Home Care

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3