Grandparents’ Experiences of Childhood Cancer: A Qualitative Study

Author:

Davies Jenny1ORCID,O’Connor Moira1,Halkett Georgia K. B.1ORCID,Kelada Lauren23ORCID,Gottardo Nicholas G.456

Affiliation:

1. Curtin University, Perth, Western Australia, Australia

2. University of New South Wales, Sydney, Australia

3. Sydney Children’s Hospital, Randwick, New South Wales, Australia

4. Telethon Kids Institute, Nedlands, Western Australia, Australia

5. The University of Western Australia, Perth, Australia

6. Perth Children’s Hospital, Nedlands, Western Australia, Australia

Abstract

A child’s cancer diagnosis has a significant impact on the lives of grandparents. Grandparents experience the stress of worrying about both their adult children and their grandchildren. Our study aimed to explore the lived experience of grandparents of children diagnosed with cancer. A qualitative design involving semi-structured interviews was used and data were analyzed using reflexive thematic analysis. Twenty grandparents aged 41 to 77 years were interviewed. Six themes were identified: (a) Diagnosis: changing everything; (b) Aspects of treatment: A different world; (c) Sandwich generation; (d) Family: Worrying about everyone; (e) Balancing work; and (f) It’s like suddenly a door opens. Our study demonstrates the life-changing impact of having a grandchild diagnosed with cancer. It expands on existing knowledge and shows that, due to an aging population and demographic changes, some grandparents must juggle the demands of caring for aging family members and working while supporting adult children and grandchildren.

Funder

A/Prof Georgia Halkett is supported by a Cancer Council of WA Research Fellowship

The Behavioural Sciences Unit is proudly supported by the Kids Cancer Alliance

Dr. Nicholas Gottardo is supported by the Perth Children’s Hospital Foundation Stan Perron Chair in Paediatric Oncology and Haematology

Jenny Davies is supported by Commonwealth Research Funding

Publisher

SAGE Publications

Subject

Family Practice,Community and Home Care

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