Affiliation:
1. University of California, Irvine, USA
Abstract
The population of family caregivers (FCGs) of persons with Alzheimer’s disease and related dementias (ADRD) is growing, as is the proportion of males taking on this traditionally female role. Caregiving research has centered around women due to historic roles, resulting in a knowledge gap regarding male caregiving experiences. The purpose of this qualitative descriptive study was to explore the experiences of male FCGs of people with ADRD. Eleven male caregivers were recruited and interviewed by telephone or Zoom/videoconferencing. Data were analyzed using thematic analysis. Four major themes emerged highlighting males’ struggles with the unfamiliar caregiving role and changing identity; their acknowledgment of personal growth and discovery through caregiving; their challenges in finding the “right” kind of support; and their perceived reshaping of masculinity through the caregiving role. Male caregivers expressed unique experiences as FCGs. Findings indicate the need for researchers and clinicians to develop tailored support to address their needs.
Subject
Family Practice,Community and Home Care
Reference42 articles.
1. Caregiving in the U.S. 2020
2. Alzheimer’s Association. (n.d.). About TrialMatch: Clinical trial matching service for Alzheimer’s and other dementia. https://www.alz.org/alzheimers-dementia/research_progress/clinical-trials/about-clinical-trials
3. Alzheimer’s Association. (2022). 2022 Alzheimer’s disease facts and figures. https://www.alz.org/media/Documents/alzheimers-facts-and-figures.pdf
4. Doing, Re-doing or Undoing Masculinity? Swedish Men in the Filial Care of Aging Parents