How Did the COVID-19 Restrictions Impact People Living With Dementia and Their Informal Carers Within Community and Residential Aged Care Settings in Australia? A Qualitative Study-Reference-Cited by-同舟云学术

How Did the COVID-19 Restrictions Impact People Living With Dementia and Their Informal Carers Within Community and Residential Aged Care Settings in Australia? A Qualitative Study

Published:2022-06-08 Issue:3 Volume:28 Page:205-218
ISSN:1074-8407
Container-title:Journal of Family Nursing
language:en
Short-container-title:J Fam Nurs

Author:

Lion Katarzyna Małgorzata¹^ORCID,Moyle Wendy¹^ORCID,Cations Monica²,Day Sally²,Pu Lihui¹^ORCID,Murfield Jenny¹³^ORCID,Gabbay Mark⁴⁵,Giebel Clarissa⁴⁵

Affiliation:

1. Griffith University, Brisbane, Queensland, Australia

2. Flinders University, Adelaide, South Australia, Australia

3. Deakin University, Geelong, Victoria, Australia

4. University of Liverpool, Liverpool, UK

5. National Institute of Health Research Applied Research Collaboration North West Coast, Liverpool, UK

Abstract

The aim of this study was to explore how formal social support changed after implementation of the COVID-19 public health measures and how these restrictions affected people living with dementia and their informal carers in Australia. Sixteen informal carers and two people living with dementia were interviewed between August and November 2020. Participants were asked about their experiences of the pandemic and the impact that the restrictions had on their lives and care. Thematic analysis identified four overarching themes describing (a) prepandemic limitations of the aged care system, (b) the aged care system’s response to the COVID-19 restrictions, (c) changes affecting informal carers, and (d) the challenges faced by people living with dementia. The findings highlighted the challenges faced by the Australian aged care system before the pandemic and the additional burden placed on informal carers who supported people living with dementia across residential and home settings during the pandemic.

Funder

National Institute for Health Research Applied Research Collaboration North West Coast

Publisher

SAGE Publications

Subject

Family Practice,Community and Home Care

Link

http://journals.sagepub.com/doi/pdf/10.1177/10748407221101638

Reference36 articles.

1. Australian Health Protection Principal Committee. (2020). Australian Health Protection Principal Committee (AHPPC) statement on the national COVID-19 response for residential aged care facilities. https://www.health.gov.au/news/australian-health-protection-principal-committee-ahppc-statement-on-the-national-covid-19-response-for-residential-aged-care-facilities-0

2. Thematic analysis.

3. Behavioral and Psychological Effects of Coronavirus Disease-19 Quarantine in Patients With Dementia

4. Time of isolation, education and gender influence the psychological outcome during COVID-19 lockdown in caregivers of patients with dementia

5. People with young-onset dementia and their families experience distinctive impacts of the COVID-19 pandemic and associated restrictions

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