A scoping review to identify process and outcome measures used in acceptance and commitment therapy research, with adults with acquired neurological conditions

Author:

Foote Hannah12ORCID,Bowen Audrey12ORCID,Cotterill Sarah3,Hill Geoff4,Pieri Matilde5,Patchwood Emma12ORCID

Affiliation:

1. Geoffrey Jefferson Brain Research Centre, The Manchester Academic Health Science Centre, Northern Care Alliance and University of Manchester, Manchester, UK

2. Division of Neuroscience and Experimental Psychology, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK

3. Centre for Biostatistics, University of Manchester, Manchester, UK

4. South Tees Hospitals NHS Foundation Trust, The James Cook University Hospital, Middlesbrough, UK

5. Glasgow Caledonian University, Glasgow, UK

Abstract

Background Acceptance and Commitment Therapy interventions are increasing in use in neurological populations. There is a lack of information on the measures available. Purpose To identify and classify the measures used in Acceptance and Commitment Therapy research studies with adults with acquired neurological conditions. Methods PRISMA-ScR guided scoping review. MEDLINE, PsycInfo and CINAHL databases searched (up to date 29/06/2022) with forward and backward searching. All study types included. Extraction of Acceptance and Commitment Therapy process-of-change and health-related outcome measures. Outcomes coded using the Core Outcome Measures in Effectiveness Trials (COMET) taxonomy. Results Three hundred and thirty three papers found on searching. Fifty four studies included and 136 measurement tools extracted. Conditions included multiple sclerosis, traumatic brain injury and stroke. Thirty-eight studies measured processes of change, with 32 measures extracted. The process measure most often used was the Acceptance and Action Questionnaire ( n = 21 studies). One hundred and four health-related outcome measures extracted. Measures exploring quality of life, health status, anxiety and depression occurred most frequently, and were used in all included neurological conditions. COMET domains most frequently coded were emotional functioning/well-being ( n = 50), physical functioning ( n = 32), role functioning ( n = 22) and psychiatric ( n = 22). Conclusions This study provides a resource to support future identification of candidate measures. This could aid development of a Core Outcome Set to support both research and clinical practice. Further research to identify the most appropriate and relevant targets and tools for use in these populations should include expert consensus, patient, carer and public involvement and psychometric examination of measures.

Funder

Research Impact Scholarship, Division of Development and Alumni Relations, University of Manchester

Stroke Association UK

Publisher

SAGE Publications

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation

Reference213 articles.

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2. The Neurological Alliance. Neuro patience: Still waiting for improvements in treatment and care [Internet], https://www.neural.org.uk/wp-content/uploads/2019/07/neuro-patience-2019-1.pdf (2019).

3. Acceptance and Commitment Therapy, Relational Frame Theory, and the Third Wave of Behavioral and Cognitive Therapies – Republished Article

4. A systematic review of the use of Acceptance and Commitment Therapy (ACT) in chronic disease and long-term conditions

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